Welcome to The Archive of MySpace stories I've posted on The Blog - stan

Welcome to The Archive of MySpace stories I've posted on The Blog - stan
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8/10/07

My 11th Tysabri infusion was yesterday, and boy oh boy - do I feel like Barry Bonds today



Subject: I had my 11th Tysabri Infusion Yesterday :)

My 11th Tysabri infusion was yesterday, and boy oh boy - do I feel like Barry Bonds today! (Although I can admit that this feeling is drug enhanced - heehee).

I can still wiggle my toes a little bit this morning and move my feet slightly, my balance is improving, as well as my strength, speech, cognition, and coordination. Even though these improvements for me don't last the full 28 days until my next infusion, when I do feel them again, the feeling is just awesome, woooohooooo!

Considering August is the month for the heat of the Summer to kick in, and a majority of MS patients don't do well in the heat (the heat can cause relapses and exacerbations of MS symptoms), I am doing really well at this time of year and my active MS has been abated/controlled outstandingly with the help of Tysabri.

Even though I am not receiving outstanding results like some MS patients are, I am still thrilled with the use of Tysabri because it is preventing further relapses and slowing my disease process down (and I don't have to give myself shots anymore!)

I can and will never lose hope for making more improvements (even in the face of reality) with Tysabri because for me, Tysabri = Hope!

Yesterday, during my infusion, a lady in the infusion chair next to mine, struck up a conversation with me regarding autoimmune diseases. She was about my age and receiving Remicade for her rheumatoid arthritis. She is also on methotrexate and prednisone, and has her liver checked regularly. She asked me what medication I was on and for what, so I told her Tysabri for Multiple Sclerosis, and briefly discussed Tysabri, its side effects, its current uses in MS and soon Crohn's disease, and its prospective uses, as well as the bad rap (PML) it received.

She asked me if she could see the Patient Medication Guide that they give me at each Tysabri infusion, and I said of course (I had at least 10 of them - LOL). She is actually a very lucky patient with RA because it is only in her feet and hands - it is not in her back, neck, or knees (as of yet), but she wants to discuss fully the side effects of Remicade, prednisone, and methotrexate with her doctor. She also wrote down the Elan website, the MSPatientsForChoice website, and we exchanged phone numbers. Odd, could she actually be starting the journey of becoming her own patient advocate? Ha!

We actually hit it off pretty well because she lives not too far from where I used to live...and we talked of old times there.

Her infusion time is approximately 4 hours every five weeks, and my infusion time (one hour, and then one hour observation time) just flew by this time, and before I knew it, my infusion nurse was unhooking me and telling me that I was free to go!

All in all, it was a wonderful infusion experience, and now I am off to do my PT exercises.

Wooooooooohoooooooo for the stablization of my MS and woooooooohoooooooo for Tysabri!

Have a great week everyone,

Lauren :)









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andrea

I hope you still feel good and good luck with the rest of your theraphy



Kimberly

Lauren--Im so happy to hear that Tysabri is working well for you! Thats awesome!! Im hoping for many days of feeling well for you!!

HUGZ!!!!
Kimberly in PA

HOPE***Have One Prayer Everyday



BE SAFE, BE STRONG

(((Lauren))), I am still happy about the Tysabri, but I am freakin' thrilled that you met someone you got along with so well. Its weird. Even in the wierdest places, you can meet people that make it seem not sdo weird. *2 thumbs up* sweetie.
~~~~~~~~~~~~~~~~~~~~~Bubba



Extreme Animal Lover

Tell me more!! I'm on rebif... not real thrilled. Despise self-injecting.
What is this Tysabri??? Tell me all about it.
I'm so excited to ask my neurologist.
I'm happy for you to have found some relief!!!
Lori



Lauren

Hi Lori -

You can read all about Tysabri on my blog at http://blog.myspace.com/index.cfm?fuseaction=blog.ListAll&friendID=109259750...there are also appropriate links listed in my blog.

To everyone else, thanks so much for your well wishes..... I'm still laughing at Bubba's comment that he's so "friggin' happy for me" LOL

(((((((( hugs to all )))))))))

Lauren



Tetsa

Dear Lauren,

I am so happy that Tysabri is working for you. This hot Florida weather is really bringing me down. I am so glad that you're doing well over these hot months. I do hope and pray that you get even better by the time Fall rolls around. I pray you see even more improvement.

You made a friend today! :) I do hope you two can get to converse and get together.

Best of luck and much hope. :)

With many hugs of hope and suport.
Tetsa



{NR} Tina {NOTW}

LAUREN - ONCE AGAIN THANK YOU SOOOO MUCH FOR TELLING US OF YOUR EXPERIENCE WITH TYSABRI .. IT MEANS SO MUCH TO ALL OF US THAT ARE GETTING READY TO START AND NOT KNOWING WHAT TO EXPECT.. AGAIN I JUST HAVE TO THANK YOU FOR MAKING ME PUSH FOR THIS. IF NOT FOR YOU, I WOULD STILL BE STUCK IN THE CORNER WAITING.. YOU ARE A TRUE ANGEL.. MANY HUGS AND I HOPE YOU FEEL AWESOME..:)



sorormp3

Yeah Lauren! Good for you!



mayjay

Good luck with the rest of your theraphy Lauren (hug) x



why am i the way i am?

awsome news
lauren

R*(H



~jennifer

hi lauren,

every time i see one of your tysabri posts i am excited for you! i just had my 4th infusion and i'm still waiting to see any result. i remain hopeful and am happy knowing i'm slowing the disease down and not giving myself injections either :O) ~jen



Lauren

Thank you, thank you all for your comments and well wishes... I truly appreciate them.

Jennifer I have a question for you...are you part of Diane B.'s God Squad? If not, it must be a different Jennifer that I am thinking of.

I am still smiling at Bubba's comment: "freakin' thrilled”....lol, I don't know why either, it just strikes me as funny...lol.

((((((((many hugs and prayers for all of you ))))))))))

Lauren :)



Trish

Very happy you are feeling better.!!!